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Burden of our carers is hidden

7/08/2008 5:00:00 AM
BRYAN Wiseman has been working seven days a week for the past 20 years.

How much superannuation does he have? Not a cent.

Mr Wiseman, 38, of Sutherland Shire, is among the 2.5 million Australians providing care for relatives or friends with a disability, mental illness, chronic conditions, or who are frail aged.

He is helping save the economy $16 billion a year in respite and nursing costs, yet his Centrelink entitlements are less than the minimum wage.

Mr Wiseman said the Government had lost touch with carers.

He has now teamed up with Reverend George Capsis from Community Outreach Ministries, Cronulla, to form a new carers' advocacy group.

The aim of the group will be to lobby the Government for increased carers' allowances, more public nursing homes, and extra aged care beds.

Mr Wiseman had just starred opposite Russell Crowe in the 1998 television hit Living with the Law when his mother Caroline, 80, had a big stroke.

He had also been left to care for his father, who had asbestosis and died in 2001.

"No one came to me and said, `you could be doing this for the next 20 years','' Mr Wiseman said. "I hadn't planned that far ahead.

"It's left me without any superannuation, any work.''

Mr Wiseman said being a carer was emotionally and physically draining, so much so he once took "a whole heap of pills'' and woke up in his kitchen "with the dogs licking my face''.

"You get to the point where you get so low you just can't cope anymore,'' he said.

"It was then that George [Reverend Capsis] called in.''

Mr Wiseman's mother spent a short time in a nursing home this year but became seriously ill. She has been in Sutherland Hospital but may soon move to a nursing home at Bexley.

"I was desperately trying to get something in the shire, but couldn't,'' he said.

Mr Capsis, a supporter of Daniel's Shield, a Queensland-based organisation that fights for those affected by nursing home neglect, said the Government needed a new attitude to carers.

"There's just no humanity anymore,'' Mr Capsis said.

"Half-baked respite care [is] just not enough.''

Mr Capsis said one solution was for the Government to establish medical facilities providing intermediate care for people on waiting lists for nursing homes.

These facilities could be connected to hospitals.

Sutherland Shire Council recently rejected a development application for a private, 112-bed nursing home in Sutherland Hospital grounds.

But residents in Hinkler Avenue, whose homes adjoin the hospital, stopped the plan, which would have resulted part of the nursing home being the same height as their fences.

There are a number of carer support groups in Sutherland, Kirrawee, Penshurst and Kogarah.

For contact details go to: www.carersnsw.asn.au

Are you a carer? Tell us your story.

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I sit here again tonight, like I have every night for the last 13 years with a heavy sad heart. It’s about 1.00a.m. in the morning and due to the constant mental and physical stresses caused by caring for my son who has severe Autism, as well as continuous bouts of depression I am still unable to sleep properly. My marriage, like many families with disabled children has broken up It’s very hard to keep going day to day when you know your child is not going to grow up and do the normal things we take for granted as human beings. When your children are young and you're tired and run down, people will often say to you, “don’t worry it gets easier as they get older”, but for a parent with a severely disabled child, life gets harder, for our children will never grow up. I have had numerous admission to hospital for severe depression. Only on these occasion was I able to access a case manager for my son and emergency respite.. My other children have suffered and live a life you could not imagine unless you lived with a child with Autism. Thank God they are finally starting to recognize siblings as young carers. I think many carers could relate to my life. The Government know that we love our children so much we would never abandon them. The Government know that it would cost them hundreds of thousands of dollars over the years to provide the care that we as Carers are basically providing for nothing. Like I said the Government know that we love our children so much we would never abandon them.
Posted by Insomnia, 8/08/2008 2:05:13 AM
I care for my husband who has renal failure, diabetes and arthritis. He is on home haemodialysis and I am his nursing assistant. Three days a week he is on a machine for 8 hours which filters his blood and removes toxins and excess fluid. I cannot work because his health varies so much from day to day. I also have the stress of having to put needles in his arm to hook him up to the machine, and keeping an eye on him to make sure all goes well during those 8 hours. It is emotionally tiring. There are other things like managing his sugar levels, keeping track of medication, trying to ease his pain with the arthritis....it mounts up. I reckon over the time we've been together (4 1/2 years) I have saved the government thousands of dollars by keeping him at home rather than in hospital.
Posted by rayne, 8/08/2008 9:53:47 PM
As a person with a disability and a community care worker, I thank people like Mr Wiseman for their courage in accepting a caring role and for sharing their personal stories with others, so that their needs can be better understood by policy-makers in government. I can only imagine the fear, exhaustion and isolation felt by many carers, but please don’t feel you have to do it all alone. The NSW and Australian governments fund a range of supports for Shire residents who need it, from social activities, community transport, meals on wheels, home maintenance and help with housework and personal care for the frail older person to in-home or out-of-home respite and other specific services for carers. I encourage any carers reading this to call Commonwealth Carelink on 1800 O52 222 or myself at the HACC Development Project on 9542 6244 for more information or view our website at www.sscci.org.au. Specific information, support and counselling for carers is available through Sutherland Shire Carer Support Service on 9542 6292, which also runs social groups for carers.
Posted by HACC DO, 10/08/2008 4:02:09 PM

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Does anyone care? Reverend George Capsis (rear) and Bryan Wiseman said more needed to be done for carers. Mr Wiseman has been caring for his mum Caroline for 20 years. Picture: Wesley Lonergan
Does anyone care? Reverend George Capsis (rear) and Bryan Wiseman said more needed to be done for carers. Mr Wiseman has been caring for his mum Caroline for 20 years. Picture: Wesley Lonergan
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