She is the only known person in Australia with a very rare form of dwarfism called Mulibrey nanism.

There are just 113 people in the world with the genetic disorder, which affects the growth of the muscles, eyes, liver and brain. It also affects the heart, kidney and lungs.

Jasmine was diagnosed with the disorder when she was two after developing stage four Wilms tumour, a cancer.

Now in remission, Jasmine, 3, is quite the determined young lady at just a third of the size of her brother, Jaidyn, 6.

Her parents Kim and Wayne, of Menai, said the rarity of the disorder meant it was hard to access information.

They are now raising money to go to the United States to attend a convention for children with growth disorders.

The Magic Foundation convention brings together the leading doctors in the field and allows children to have a weekend where small is normal, Mrs Clingan said.

"My aim of the trip is to try to see if we can get some ideas from other doctors.

"We are not getting very far here."

People with Mulibrey have a higher risk of developing ovarian cancer. Jasmine will also be unable to have children.

"This basically came across to us [on the internet] as something just in a paragraph," Mr Clingan said.

"To us that is really big."

The life expectancy for people with the disorder varies greatly.

The family hopes that by going to the US and raising money for future treatment, the quality of their daughter's life may be maintained.

"We want to provide the best possible future for her," Mrs Clingan said.

Jasmine is a headstrong little girl who loves to dance and play with her favourite doll, Jessica.

To donate to the family, phone Kim Clingan on 0410 609 232 or Julie Southwell on 0425 281 316.

For more details about Jasmine and the Magic Foundation, go to: www.jasminesjourney.com