Special screening of Five Feet Apart to raise funds for cystic fibrosis research

Rubyniks staff Meagan Gowans (left), Sarah Johnston (owner), Lori Haami and Sarah Beer promote the cystic fibrosis research fundraiser. Picture: Chris lane
Rubyniks staff Meagan Gowans (left), Sarah Johnston (owner), Lori Haami and Sarah Beer promote the cystic fibrosis research fundraiser. Picture: Chris lane

Customers and staff at Rubyniks cafe in Westfield Miranda are supporting a special movie night, organised by chef Sarah Beer to raise funds for cystic fibrosis research.

Ms Beer, who suffers from the genetic condition, organised the special screening of Five Feet Apart at Event Cinemas Miranda on Wednesday, April 3.

Haley Lu Richardson and Cole Sprouse star in the new romantic drama about two teenagers living with cystic fibrosis, who fall in love after meeting in hospital.

The movie was released in the US on March 15 and will be in Australian cinemas later this month.

Every four days a child is born with cystic fibrosis, which primarily affects the lungs and digestive system.

There is no cure, but life expectancy has greatly increased due to advances through research.

"This horrible illness is taking away too many young lives," Ms Beer said.

"Raising funds and awareness among people out there is just so important to me".

Ms Beer said movie tickets were available at the cafe.

People could also buy tickets in a raffle, with excellent prizes donated by shop owners in the Westfield centre.

Ms Beer, who has worked at Rubyniks for 16 years, said the response from customers had been fantastic.

"One person walked into the Commonwealth Bank at Caringbah and anonymously deposited $1000 into the fundraiser account," she said.

"All proceeds will go to Cystic Fibrosis Australia (CFA) and the event has been certified by CFA and 65 Roses Australia."

Ms Beer said life expectancy for someone living with cystic fibrosis was now 37.

"My mum says when I was born doctors told her I would not live past 17," she said.

"She broke down in tears but still fought the fight in the years ahead and here I am still standing at 34.

"My lung function is down to 30 per cent and I can only do casual work.

"I can take up to 60 tablets a day, depending on what I eat, and there are endless physio treatments and nebulised antibiotics.

"But, the amount of new medication coming through these days thanks to research breakthroughs is incredible."