Endeavour Sports High School principal is first NSW ambassador for Cure4 Cystic Fibrosis Foundation

New ambassador: Endeavour High School principal James Kozlowski with his niece Aveline, who has cystic fibrosis.

New ambassador: Endeavour High School principal James Kozlowski with his niece Aveline, who has cystic fibrosis.

Day to day, James Kozlowski is busy taking charge of his school, but the principal of Endeavour Sports High School can add another important role to his name.

Mr Kozlowski has been chosen as the inaugural NSW ambassador of Cure4 Cystic Fibrosis Foundation.

During time away from his duties as principal, Mr Kozlowski has been raising money for the Cure4 Cystic Fibrosis Foundation (Cure4CF).

Raising awareness of the condition is a cause close to his heart. His niece Aveline, was born with the disease.

Cystic fibrosis primarily affects the lungs and digestive system. The average life expectancy is 37 years.

In Australia, one in 2500 babies are born with CF. On average one in 25 people carry the gene, with most unaware they are carriers. Management and treatment is life-long.

Established in 2009, Cure4CF is a registered non-profit charity with the primary goal of finding a cure.

"Aveline has already had eight visits to the Sydney Children's Hospital at Randwick. She takes enzyme and salt replacements with each feed as she can't digest nutrients without them. She is on antibiotics to ward off infection, and in November will have to undergo the first of her yearly bronchoscopies under general anaesthetic," Mr Kozlowski said.

The principal is also gathering a team of supporters from his school to take part in the Sydney Morning Herald Half-Marathon next year, to continue his mission of raising funds.

"I've started social media pages for posts about my role, the Cure4CF Foundation and our fight to find a cure, and my niece's journey," he said.

Comments